Small Ensemble Guitar,Hand Percussion - Level 3 - Digital Download SKU: A0.1028579 Composed by Leon deVose, Jr. Christian,Contemporary,Praise & Worship. Score and parts. 25 pages. Leon deVose #6404447. Published by Leon deVose (A0.1028579). I wrote this song when I reunited with an acquaintance I had not seen in about 20 years. She told me about her daughter, Rachel, who was born with two extremely rare diseases. The first is Subcortical Band Heterotopia. The other is Lennox Gastaut Syndrome. The latter, likely consequential to the first, is the more lethal of the two, as it causes severe seizures and is not controlled for long by drugs. The first, the most devastating and life-affecting is characterized by abnormal brain development which causes this delightful young woman of 25 to be locked in the brain of a pre-pubescent child or younger.Dad has left, and his legal obligation to child support ended in 2019. In NJ, disability, no matter how severe, only extends the legal child support obligation to age 23. Of course child support payments cannot possibly fulfill or replace the financial, emotional and moral support needed to care for a child without such severe disability. How much less when the child has such severe disabilities.All proceeds from sales of this song, including licensing and royalties, will be gifted to Rachel's Mom until 31 December 2032 or ten years after Rachel's decease, whichever is later.
